-since 2018

Online help for children affected by Motor Neurone Disease

The activities include games and stories and have been created by the Motor Neurone Disease Association to help children better understand the condition.

The Motor Neurone Disease (MND) Association has launched an online activity hub for children in families affected by the disease.

Called MND Buddies it is aimed at four to ten-year olds to help them understand that they are not alone in having to deal with the disease.

It features three stories that can be read or listened to and involves animal characters, who help guide childen through activities such as games and galleries.

“This provides families with a gentle resource to begin explaining MND to children, who can then explore on their own, in a safe environment”, said a statement from the charity.

Family support

MND Association care information manager Kaye Stevens added: “People with motor neurone disease regularly tell us how important it is for their families to have the help and support they need.

“MND can affect how people walk, talk, eat, drink and breathe. For some, it can even affect how they think and behave. The impact can be very hard for children to understand, but the MND Buddies and our storybook gently introduce some of the changes they may see. This can help children feel more involved and build resilience for the challenges ahead.”

“We’re very proud to add these resources to our provision, as affected families have told us they can really help to ease communication about MND.”

The MND Buddies initative has been supported by The Mountbatten Memorial Trust and Anton Jurgens Charitable Trust.

MND is a fatal, incurable and rapidly progressing disease that affects the brain and spinal cord. A third of people die within a year of diagnosis and half die within two years.

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