-since 2018

Roald Dahl charity launches online video series

The Everyone’s Business campaign has been launched by Roald Dahl’s Marvellous Children’s Charity to highlight its work supporting young people as they become adults.

A children’s health charity named after children’s author Roald Dahl has launched an online video series to highlight the gap in care seriously ill young people can experience when moving up to adult services.

The series on Youtube is part of Roald Dahl’s Marvellous Children’s Charity campaign called Everyone’s Business. The videos are also available via a dedicated page on the charity’s website.

This looks at how the transition to adulthood for seriously ill children can affect a wide range of people, from the young people themselves and their family as well as healthcare professionals and the general public.

The videos also explain how the charity is helping young people and their families.

Problems during the transition to adult care include delays in treatment and moving away from an intensive support environment. Many young people can find the experience daunting, says the charity.

The videos feature the real life stories of those being helped by the charity as well as those that support them.

This includes Ben, who explains how the hereditary blood disorder Sickle Cell has affected his life. Also featured is Giselle, a Roald Dahl Transition Nurse Specialist at King’s College Hospital NHS Trust.

Funding transition nurses

Roald Dahl’s Marvellous Childern’s Charity Trustee Michelle Johnson said: “Transition care has reached a critical point in the NHS with many children and young people reporting a poor experience and at risk of falling through a transition gap in care. It’s vital that we (the charity) innovate in this area as part of our commitment to help every seriously ill child lead a marvellous life. “

The campaign also highlights the charity’s plans to fund healthcare ‘transition posts’ in 2020 having already funded four such specialist nursing posts.

“Roald Dahl Specialist Transition Nurses can dramatically improve the quality of care that young people receive as they prepare and experience transition, and we are delighted to be able to fund these three new posts as well as committing to further posts in 2020,” added Johnson.

The charity was set up in memory of the Roald Dahl, originally as the Roald Dahl Foundation, shortly after his death in 1990. It focuses on a range of serious illnesses having originally specialised in brain and blood disorders.

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